Ex-Chester leader describes battle with rare form of cancer

Published: September 30, 2012 

Tom Hamilton points to the point on his cheek where a cancer the size of a grape was found in his sinus.

DON WORTHINGTON — dworthington@heraldonline.com

Tom Hamilton’s battle cry was born of despair, nurtured by hope.

The battle cry – and three guardian angels – protected Hamilton during a time of greatest need.

The battle cry?

“Cancer sucks!”

That’s usually the first thing Hamilton, a 68-year-old salesman and former Chester County councilman, will tell you if you ask about his cancer.

Like many who get cancer, he didn’t know much about the disease before he was diagnosed.

But he remembers every second of the journey that started when he answered his cell phone five years ago while walking down the back steps of his home on West End Street.

Every cancer patient, Hamilton said, remembers “that phone call.”

“When you get the word, you immediately go into shell shock; you’re numb. You quit listening; you can’t absorb this stuff.”

Hamilton’s call came from Dr. Ben Paysinger, an ear, nose and throat specialist in Columbia. Hamilton had been sent to see a specialist when a swollen cheek didn’t respond to treatment.

Reflecting back on that moment, Hamilton realized the first of the three guardian angels had protected him. The swelling was the result of an early-morning fall in his bedroom.

He had tripped, falling forward. His eyes, teeth and nose missed the corner of the treadmill. His right cheek slammed into the treadmill and swelled.

“I looked like a raccoon,” Hamilton said.

Had it not been for his guardian angel, Hamilton said, he could have hurt himself more seriously. More importantly, he said, the angel who tripped him led him to Paysinger, who examined Hamilton’s nasal and sinus passages.

Paysinger discovered a growth the size of a grape underneath Hamilton’s left eye.

A biopsy was taken and tested.

“N-A-S-O-P-H-A-R-Y-N-G-E-A-L” cancer, Hamilton said, deliberately pronouncing each letter like he was at a spelling bee. “You learn to spell those words when you have this crap.”

Not only did Hamilton have cancer, it was a rare form.

Nasopharyngeal cancer affects about 5,000 people each year. Its proximity to the brain and other organs can make it deadly. It can easily spread through tissue and be transmitted by the lymph system and the blood system.

Enter guardian angel No. 2.

Hamilton and his family grappled with the diagnosis. His daughter shared the diagnosis with a friend whose sister is an oncologist and cancer researcher, Dr. Joanne Weidhass at the Yale School of Medicine.

Weidhass called Hamilton, asking if she could ask about his treatment.

She told him he had just one chance to beat this cancer. Weidhass then got Hamilton an appointment with Dr. David Brizel of Duke Medicine in Durham, N.C.

“She is my second guardian angel,” Hamilton said. She taught me, “Get a second opinion!”

It was at Duke that Hamilton saw a nurse wearing a button that said, “Cancer Sucks.”

Hamilton is emphatic – he stole the message, he didn’t borrow it.

The message, combined with Brizel’s treatment plan, gave Hamilton hope.

Hamilton – a graduate of the Citadel and former member of the Army National Guard – viewed Brizel’s treatment as a battle plan.

Armed with a battle plan and a battle cry, Hamilton decided, “I’ll beat this; I’ve got a sledgehammer in my hands.”

For six weeks, Hamilton’s treatment alternated between chemotherapy and radiation – both designed to kill the mutinous cancer cells.

Hamilton was fitted with a face mask that looked like a combination of a hockey goalie’s mask and a giant nylon net. The netting allowed doctors and technicians to pinpoint the location on his cheek and bombard the cancer cells.

Pinpoint treatment is essential, because chemotherapy and radiation don’t discriminate between good and cancerous cells.

“They attacked the cancer from 14 different directions,” he said.

On one shoulder was hope, he said, and on the other was despair. He recorded the emotions of his journey, carefully in script in a small notebook.

Hamilton entered the name of the people who helped, especially his wife, Gail, and his children, Trey and Beth.

Each went to Durham during his treatment. Their understanding of what was happening was crucial, he said.

“You have to have a team to battle cancer,” Hamilton said. “All they initially knew was, it’s cancer and it’s horrible.”

By being at Duke, they understood the treatments and it eased their minds.

The understanding and support Gail gave to her husband, makes her Hamilton’s third guard angel. He is convinced she is a key to his recovery.

The treatments resulted in sores in his mouth. He dreamed about what he wanted to eat when the treatments were over. First on the list was a tomato-and-mayonnaise sandwich – but not just any tomato.

It had to be a home-grown tomato from his garden.

After six weeks of treatment, Hamilton arrived at Duke one November day, fatigued, but bearing thanks. He had two cakes – one for the people in radiology, the other for the people in chemotherapy. Both had the same inscription: “Cancer Sucks.”

He left a picture of lilies blooming in the snow, Duke’s way of saying, “You’ve beaten it. You’re blooming.”

When Hamilton returned to Chester, he confronted cancer rather than shrink from it. His experience taught him that the cancer patient and his friends need honestly in approaching the disease.

“People are afraid to say what kind of cancer they have,” Hamilton said. “They need to say the word – cancer – and the type they have.”

Too many people, he said, think of it as a stigma, not a disease.

Friends also need to know how to react, Hamilton said. When he returned to Chester during his treatments, he said people avoided him when they ran into him while he was out shopping.

“They didn’t know what to say,” Hamilton said.

That hurt, he said.

All Hamilton wanted was for people to say they care, that they were praying for him.

And to understand that, indeed, “cancer sucks.”

VIDEO BELOW

Don Worthington 803-329-4066

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